Thursday, July 1, 2010

It's My Blog and I'll Cry if I Want To

Today I'm having a bad day - a leftover from yesterday's bad day. I'm sore, slow and stiff. Say that 5 times really fast during a flare! Believe me, it's very difficult to do anything quickly - other than deteriorate - during a fibro flare.

I'm not sure what brought this on and I really don't care. All I know is that I've aged 30 years, seemingly overnight.

It was a 3-Trammy day yesterday with a 'to be continued' question mark hovering over my head before sleep. Sure enough, like B.O. on a teenager, it got all up in my face as soon I opened my eyes in the morning. And the next.

I don't understand why a portion of my brain tells me there is honour in not taking your meds. I didn't give myself a hard time about accepting an epidural during childbirth. Is there, seriously, stoicism in suffering? The rational mind has already answered my own question. Of course there is no valour in needlessly suffering. To what end? So I can wear an imaginary sash and crown? To reassure myself that I am the new and improved, clean, drug-free Fibro Queen? The last time I checked there were no golden statuettes being handed out for 'Fibromite of the Year': Biting the Bullet since Y2K.

If I don't take my pain meds as needed, the outcome is always the same. I curl up in bed and if anyone is foolish enough to approach me, I hiss and snarl like a wounded animal.

This blog has taken me 4 days to write. I've never written during a flare as I typically wait for the pain to subside. Well, it's day 4 of said flare and it's still showing no sign of fucking off.

I'm not cheerful, happy FibroCathy today. This is the reality of fibro. This is Fibro in your Face. It Stinks. I've been in relentless pain since Monday. My past claims about counting (on one hand) the number of times fibro has brought me to tears has been blown to shit - I'm well past double digits now. I'm feeling despondent and desperate. Everything hurts and I'm so over this. I'm in so much pain I want to puke. I laid down for a nap yesterday and woke up 6 hours later. Even the phone ringing beside my head didn't rouse me.

I went to buy groceries last night. I brought along my daughter as I couldn't lift a package of Rice-a-Roni even if I'd wanted to. She did the grunt work while I pointed. My hip lightly grazed the check-out counter and I couldn't stop a loud 'OWWWWWW' from escaping, prompting weird looks from people.

As I tried to settle myself in the evening, I found the house hot. My hair is long and my neck was sweaty so I put up my hair in an elastic band only to find that my hair hurt. How the hell does hair hurt?

I felt terribly guilty telling my husband not to touch me, especially as it was our 26th wedding anniversary yesterday. The slightest sensation sends me through the roof and for all the wrong reasons, honey! I've certainly challenged him in the 'for better or for worse' department.

I realize I'm moany, groany and whiny. I have no inspirational wisdom to impart. No witticisms or optimistic prattle. It's my blog and I'll cry if I want to.


  1. Ohh Cathy...I feel for's good that you have this outlet to pour out your feelings, even though it doesn't help the pain, at least you can look back on it in better times. Nobody can realize what you are going through...we just have to be here for you and wish you some relief real soon! Hugs !! ..(virtual ones don't hurt) !!

  2. Oh, Cathy, I'm so sorry you're having such a rough time. You were SOOO good for such a long time recently. Maybe you were too good - maybe you need to take a small dose of meds even when you feel great. You are the only one who can judge your actions against your reactions. I am here for you if you need me. XOXOX Laurie

  3. Kaye and Laurie, your concern and support mean more to me than you'll ever know.

    I have an important UPDATE: since applying a new pain patch that my dr. prescribed (BuTrans), I have had exquisite relief since yesterday afternoon. No side effects, so far. It is still early, but it could be a Godsend.